She is my daughter.She has been immersed in the turbulence of life at an early age.However, what i admire about her is she could endure each cyclone with such an heroic act..
At 3 years old she suffered from a high fever and was diagnosed lung infection.Being a government servant, there is no better place to get affordable treatment other than a government hospital.I could still remember how i had to take care of her for eight days at the hospital and sleeping on a comforter laid on a cold, cemented floor for 8 nights.But most of the days and nights i would be wide awake sponging her little body for fear she might get into a fit.Although she was discharged later, the trips to hospital for continuation of care were endless..
At 6 years old, she suffered from a severe abdominal pain.That evening she vomited continuously.She could not sleep.I tried to rub some ointment on her stomach but it didnt get any better.She cried and whined all night long and it went on and on until 5 o'clock in the morning.So, i took a decision to bring her to a private hospital.Why not..if she could get any better fast.At the private hospital, still those 'expertists' could not diagnose her sickness.Infact to get her urine tested, i had to remind the nurses to do so, that was after almost one day being admitted!The doctor diagnosed her as UTI patient and was given antibiotics.On the third day she was brought for an ultrasound, and the elderly doctor could only tell me that there was something abnormal in the stomach.That evening i asked for a dismissal note and for that three days i was charged rm3000 for a service below satisfactory level.I paid in cash...
A motherly instinct told me that my daughter was suffering from more than just UTI(urinary tract infection)So, later after much discussion with my other half,I brought her to see the paediatrician at the government hospital...and her hospital episodes began...
She had to go through x-rays,ultrasound, MCU,KIV scope ,Renal DPTA and a few others which i m not quite familiar with.For her DPTA we opted for The National Cancer Society since there was a along list at HKL.For that we were charged rm 200. To tract down her complications she had to see paediatrician,nephrologist,radiologist,urologist,pathologist from MO level up to the consultant level.They kept on changing her antibiotics from Bactrim to Zenacef to Augmentine.She was trusted from one paediatrician to another since we were always on the move from the east coast to the west coast where she finally ended up in KL Hospital under a vigilant care of two great consultants Miss Susan and Mr. Murali.The two finally diagnosed my daughter as having etopic kidney, meaning the non-functioning of her right pelvic kidney. The kidney has to be removed or else she would be having UTI through out her life and had to rely greatly on antibiotics.Chances for her left kidney to get infected due to UTI were great too.A date for nephrectomy was set on 17 May 2003.That was two years after her complaint of abdominal pain!
17 May 2003- I could still remember vividly the day my daughter was wheeled into the freezing operation room.The anaesthetist kept on talking to her, praised her for having such a beautiful name and gave words of encouragement to boost her spirit.I gazed at her through the glass door until she finally drawn into unconsciousness after blowing a balloon which later she related to me as having a taste of strawberry.
I waited for her in the next room.Telling the truth, I was scared..too scared...but calls after calls from my colleague gave me strength,assurance,comfort and confidence.After exactly three hours, my name was buzzed out from the intercome.I was needed in the recuperating room.I opened the connecting door and there she was..my daughter lying on bed..so small..so fragile but to me she is so courageous, so heroic to battle through the worst stage.In her semi-conscious state, she held my hands and gave me the sweetest smile ever.My daughter was released 3 days later and a week after she was already cycling on her bike...
That was not the end..2 years later, she started having lots of discharge which made her days uncomfortable.So, the paeds passed the case to the gynaecologist.After several tests and scopes, they concluded that my daughter was lacking in female organ..that was the womb.This was after 2 years of visitation.The news came out like a bomb shell. I was dumbfounded upon hearing the result.How could it be..I asked the 'expert' if there was anything could be done.Bluntly, she said, nope...the organ was missing and there was no such thing as 'transplant' in this case.
As a mother, I was frustrated..with the doctor, with the result and with the the effort they had shown.So, I requested to see the top person, the person who supervised the case and did the scope.He gave me a time limit i.e 2 years before he could make any confirmation to the result..so..there was still hope..though a frail one.
Days passed.I kept thinking about what lies in her future.Of course, it is a dream of any mother to see her daughter finding the right partner, getting married, having a family and so on.It tore my heart everytime I looked at her.
However,yesterday I got the most wonderful news that I hugged and kissed her.The news that made my daughter, Afifah a true lady, the news that definitely confirm her womb exists!
To my daughter Afifah Dayana which means 'honour and brave': Continue to discover what life has in store for you with strength,perseverance,faith in God and optimism.I am sure you can beat all the upcoming battles and obstacles..
Momy will always love you and pray for you..
At 3 years old she suffered from a high fever and was diagnosed lung infection.Being a government servant, there is no better place to get affordable treatment other than a government hospital.I could still remember how i had to take care of her for eight days at the hospital and sleeping on a comforter laid on a cold, cemented floor for 8 nights.But most of the days and nights i would be wide awake sponging her little body for fear she might get into a fit.Although she was discharged later, the trips to hospital for continuation of care were endless..
At 6 years old, she suffered from a severe abdominal pain.That evening she vomited continuously.She could not sleep.I tried to rub some ointment on her stomach but it didnt get any better.She cried and whined all night long and it went on and on until 5 o'clock in the morning.So, i took a decision to bring her to a private hospital.Why not..if she could get any better fast.At the private hospital, still those 'expertists' could not diagnose her sickness.Infact to get her urine tested, i had to remind the nurses to do so, that was after almost one day being admitted!The doctor diagnosed her as UTI patient and was given antibiotics.On the third day she was brought for an ultrasound, and the elderly doctor could only tell me that there was something abnormal in the stomach.That evening i asked for a dismissal note and for that three days i was charged rm3000 for a service below satisfactory level.I paid in cash...
A motherly instinct told me that my daughter was suffering from more than just UTI(urinary tract infection)So, later after much discussion with my other half,I brought her to see the paediatrician at the government hospital...and her hospital episodes began...
She had to go through x-rays,ultrasound, MCU,KIV scope ,Renal DPTA and a few others which i m not quite familiar with.For her DPTA we opted for The National Cancer Society since there was a along list at HKL.For that we were charged rm 200. To tract down her complications she had to see paediatrician,nephrologist,radiologist,urologist,pathologist from MO level up to the consultant level.They kept on changing her antibiotics from Bactrim to Zenacef to Augmentine.She was trusted from one paediatrician to another since we were always on the move from the east coast to the west coast where she finally ended up in KL Hospital under a vigilant care of two great consultants Miss Susan and Mr. Murali.The two finally diagnosed my daughter as having etopic kidney, meaning the non-functioning of her right pelvic kidney. The kidney has to be removed or else she would be having UTI through out her life and had to rely greatly on antibiotics.Chances for her left kidney to get infected due to UTI were great too.A date for nephrectomy was set on 17 May 2003.That was two years after her complaint of abdominal pain!
17 May 2003- I could still remember vividly the day my daughter was wheeled into the freezing operation room.The anaesthetist kept on talking to her, praised her for having such a beautiful name and gave words of encouragement to boost her spirit.I gazed at her through the glass door until she finally drawn into unconsciousness after blowing a balloon which later she related to me as having a taste of strawberry.
I waited for her in the next room.Telling the truth, I was scared..too scared...but calls after calls from my colleague gave me strength,assurance,comfort and confidence.After exactly three hours, my name was buzzed out from the intercome.I was needed in the recuperating room.I opened the connecting door and there she was..my daughter lying on bed..so small..so fragile but to me she is so courageous, so heroic to battle through the worst stage.In her semi-conscious state, she held my hands and gave me the sweetest smile ever.My daughter was released 3 days later and a week after she was already cycling on her bike...
That was not the end..2 years later, she started having lots of discharge which made her days uncomfortable.So, the paeds passed the case to the gynaecologist.After several tests and scopes, they concluded that my daughter was lacking in female organ..that was the womb.This was after 2 years of visitation.The news came out like a bomb shell. I was dumbfounded upon hearing the result.How could it be..I asked the 'expert' if there was anything could be done.Bluntly, she said, nope...the organ was missing and there was no such thing as 'transplant' in this case.
As a mother, I was frustrated..with the doctor, with the result and with the the effort they had shown.So, I requested to see the top person, the person who supervised the case and did the scope.He gave me a time limit i.e 2 years before he could make any confirmation to the result..so..there was still hope..though a frail one.
Days passed.I kept thinking about what lies in her future.Of course, it is a dream of any mother to see her daughter finding the right partner, getting married, having a family and so on.It tore my heart everytime I looked at her.
However,yesterday I got the most wonderful news that I hugged and kissed her.The news that made my daughter, Afifah a true lady, the news that definitely confirm her womb exists!
To my daughter Afifah Dayana which means 'honour and brave': Continue to discover what life has in store for you with strength,perseverance,faith in God and optimism.I am sure you can beat all the upcoming battles and obstacles..
Momy will always love you and pray for you..
2 comments:
afifah dayana!
wut a nice name =)
what a touching story...you must be proud for having such a strong daughter...
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